Here are a few web sites you may find additional support through

• SMASpace - SMASpace is a social networking site provided by Eminnea Inc. for families, caregivers, and organizations battling SMA.
• Gwendolyn Strong Foundation -
  
• Dr. Kathy Swoboda - Expert on SMA and selfless advisor to many, many families.
• Families of SMA - Families of SMA was founded in 1984 for the purpose of raising funds to promote research to find a cure for Spinal Muscular Atrophy, and to support families affected by SMA.
• FightSMA - An international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two.
• SMASupport - Dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the devastating genetic disease called Spinal Muscular Atrophy.
• Addy's Adaptations - Addy’s Adaptations, Inc. is a non-profit organization that was started to provide additional avenues of help and hope for families who are dealing with SMA.
• Kyle and Friends - Kyle and Friends is dedicated to spreading awareness about Spinal Muscular Atrophy, giving newly diagnosed families the most up to date information, and raising money for a cure.
• B4SMA - Our sole purpose is to provide love and blanket hugs to SMA children and their families. B4SMA was founded in March 2004 by MJ Purk and Brenda Hanson.

Encouraged Reading:

• Consensus Statement for Standard of Care in SMA
• Respiratory Management - by Dr. Swoboda